Upcoming Webinars Archived Webinars Training Vitals Host A Webinar About Get Updates Contact

Social Media Network for Heart Failure Patients in Development by Novartis

XTALKS VITALS NEWS

Social Media

According to Novartis, it is “the first dedicated social network for people to share their stories, support and inspire each other.”

Share this!

November 18, 2016 | by Sarah Hand, M.Sc.

Earlier this month, Novartis Pharmaceutical launched a social media community aimed at bringing heart failure patients and their caregivers together. According to Novartis, it is “the first dedicated social network for people to share their stories, support and inspire each other.”

The site – named, ‘Together in HF’ – is a free resource for both heart failure information and support. The community allows users to contribute content, and comment on other members’ posts.

Heart failure affects almost six million Americans, and Novartis hopes that the social media network will increase awareness of the condition. The platform is also set to be available as an app, with the iOS version expected to be launched in early 2017.



“Together in HF is a collective effort that brings together the expertise and resources of many organizations with a special focus on the unique social and emotional needs of people who are living with heart failure,” said Fabrice Chouraqui, Novartis president. Together in HF reportedly has around 500 members.

According to a spokesperson for Novartis, the company worked for over two years on the social community, at which time they worked closely with patient and caregiver advocacy groups, along with medical societies. They were specifically interested in learning about both the social and emotional needs of heart failure patients and their caregivers, in order to ensure the platform offered more than existing communities.

“Through working with the HF community, we discovered that patients and caregivers were burdened by the emotional aspects of HF and needed an environment where they could meet and share their stories with others who had similar experiences,” a Novartis spokesperson told BioPharma Dive. The American Association of Heart Failure Nurses, Association of Black Cardiologists, CardioSmart by the American College of Cardiology, Mended Hearts, and the National Alliance for Caregiving, are all founding members of the platform.

“It is often these less tangible effects of the condition that are overshadowed by the physical signs,” said Mary McGowan, CEO of another partnering organization, WomenHeart. “Yet we know that focusing on the whole patient experience greatly contributes to the overall health of the patient.”


Keywords: Social Media, Heart Failure, Caregiver


| NEXT ARTICLE | MORE NEWS | BLOGS | VIDEOS | POLLS & QUIZZES | WEBINARS |

Share this with your colleagues!

MORE NEWS
Lavazza Acquires Controlling Stake in Canada’s Kicking Horse Coffee

May 26, 2017 - Italian coffee company Lavazza, has secured an 80 percent equity stake in Canadian organic and fair-trade coffee company Kicking Horse Coffee, in a deal worth CAD$215 million.

Featured In: Food News


FDA First: Keytruda Approved for Cancer Treatment Based on Biomarker Alone

May 25, 2017 - For the first time, the FDA has approved a cancer treatment for solid tumors based on the presence of a biomarker, as opposed to specifying a tissue of origin.

Featured In: Biotech News


One Year of Medically Assisted Dying in Canada

May 25, 2017 - In June of 2016, the federal government of Canada passed legislation to legalize medically assisted dying.

Featured In: Life Science News


LEAVE A COMMENT
 
  
THE XTALKS VITALS INDUSTRY BLOG

Top 5 Most Impactful Tweets in Life Sciences During the Last Week

REGISTER FOR THESE WEBINARS

EU IVD Regulation: Top Five Changes for Medical Device Manufacturers to Consider


Thermal Processing Systems for the Food Industry: A Guide to Selecting Thermal Equipment and Technology


Rare Disease & Orphan Drug Development: Cost-Efficient Trial Design to Minimize Cash Burn


eTMF Workflows: Active eTMF to Improve the Quality of Clinical Trials


Copyright © 2016-2017 Honeycomb Worldwide Inc.